Health Transitions Survey
Below is a request from Professor Michael Brown at Napier University in Edinburgh regarding his survey relating to: Health transitions from paediatric to adult health services for people with complex intellectual disabilities.
"I am the Principal Research Investigator for a Scotland-wide project looking at health transitions from paediatric to adult health services for people with complex intellectual and developmental disabilities.
The picture of health transitions appears to be very mixed at the moment and we are currently interviewing nurses and carers from across Scotland with an aim of identifying current nursing best-practice at the time of transition for young people with intellectual disabilities and complex, long-term health needs. We anticipate that the findings from the study will inform the development of new nursing and health care practice and lead to the development of an education development programme to enable and promote long term change in practice, thereby improving patient care and outcomes.
How can you help?
As part of this project, we are collecting national and international best practice examples in relation to health transitions from paediatric to adult health services for people with complex intellectual disabilities.
We would like to invite anyone who has been recently or is currently involved in a program, initiative or a pathway which helps facilitate such health transitions for this population to share more information by completing a short online survey. We hope to include national and international best practice examples in our final report. More information about the project as well as a link to the survey can be found below."